Latest News | Aug 27, 2022

The Week in Review in Prescription Drug Pricing

The Week in Review in Prescription Drug Pricing

​​Similarities of corn and affordable drug prices? We really love it. I mean look at this thing! It has the juice! It should be affordable. We can tell you all about it!!!
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Welcome To The Week In Review.

1. Success Sinking In

2. Top Officials Tout New Drug Price Reforms

3. Opinions: Americans Express Gratitude For Lower Drug Prices

One More Thing: Check out this episode from the “This is Type 1” podcast featuring Iesha Meza, who shares her struggle with insulin rationing and her journey to becoming an advocate in fighting for lower prescription drug prices.

Have a great weekend, everyone!

The Week in Review in Prescription Drug Pricing

WE HAVE A LOT TO CELEBRATE THIS WEEK.
WELCOME TO THE WEEK IN REVIEW

1. Signed, Sealed, Delivered!

2. Hats Off To Patients For Advancing Popular Rx Policy 

3. Drug Price Reforms In Action

One More Thing: Prior to the House vote on the Inflation Reduction Act, P4ADNow founder David Mitchell sat down with Rachel Cohrs of STAT to discuss the work leading up to this monumental moment and his plans for the drug pricing fight ahead. You can check it out here.

Have a great weekend, everyone!

The Week in Review in Prescription Drug Pricing

 ? ? ?
 Welcome to the Week in Review.

1. A New Era For Drug Prices

2. A Payoff for Patients 

3. Senators Celebrate Drug Price Reforms

4. Pharma: A Sore Loser

5. What’s Next?

Have a great weekend, everyone!

Welcome to the Week in Review: Inflation Reduction Act Edition

Big weekend in the Senate and a big weekend for drug pricing – as Leader Schumer begins the voting process for the Inflation Reduction Act, we want to be sure you are up to speed on the drug price reforms and just how historic they are. Here’s where things stand:

1. Senators Rally Around Reconciliation

2.  Big Pharma Is Running Scared 

3. Advocates Aren’t Backing Down

4. Patients and Seniors Are Ready For Relief

5. RECAP: How Reforms Will Impact Patients

We’re around all weekend if you’re working on a story and want to connect with a patient or policy expert. Let’s get it done.

WASHINGTON, D.C. — The following statement was issued by David Mitchell, a cancer patient and founder of Patients For Affordable Drugs Now, following the Senate passage of the Inflation Reduction Act:

“The Senate made history today with passage of the Inflation Reduction Act, which will lower prescription drug prices, improve health, fight inflation, and help Americans keep money in their pockets. The provisions help ensure patients will get the innovative new drugs we need at prices we can afford. 

“This legislation – decades in the making – will, for the first time, authorize Medicare to negotiate prices directly for some of the costliest prescription medicines; institute a cap on out-of-pocket drug costs for Medicare beneficiaries; and limit annual price increases in Medicare to stop price gouging by drug corporations. CBO estimates savings of almost $300 billion to the federal government alone.

“Make no mistake, this legislation is game changing. It alters the trajectory of drug pricing and policy in the United States. It finally begins to break the power of multinational drug corporations to dictate prices of brand name drugs to the American people. It marks a shift to reforming the system in order to make it work for the people it is supposed to serve – rather than the people who profit from it.

“The victory in the Senate today would not have been achieved without tireless advocacy from hundreds of thousands of patients, their families, and allies. Their dedication to sharing their real, lived experiences made it possible to reach policymakers in Washington and counter the power of the drug companies; they are the force behind these reforms.

“We thank the 50 Democratic Senators who stood with patients to achieve this hard won victory. In the face of lies, scaremongering, and assaults by the drug corporations, they delivered for the American people who overwhelmingly support the legislation. We are grateful for the savvy work of Senate Majority Leader Chuck Schumer to achieve this goal so long sought. Onward to the House where we look forward to passage of the legislation when it convenes in the coming days.”

August 5, 2022

Dear Member of Congress,

Yesterday the pharmaceutical industry and its lobbyists — PhRMA — displayed their true colors yet again in a letter purporting to speak for the interests of patients. They do not, and this letter aims to set the record straight.

I am a cancer patient and the founder of Patients For Affordable Drugs Now — the only national patient organization focused exclusively on policies to help patients by lowering drug prices. We are independent, bipartisan, and we don’t accept funding from any organizations that profit from the development or distribution of prescription drugs. In just over five years of existence, our community has grown from zero to more than a half-million patients, family members, and allies.

In direct contrast to PhRMA, we are proud to be able to advocate on behalf of more than 3 in 4 Americans — Democrats, Republicans and independents — who support passage of the drug pricing provisions in the Inflation Reduction Act. The drug companies ignore the will of the American people and characterize the legislation as “hyperpartisan.” But, in a nation sharply divided on so many issues, this legislation enjoys overwhelming, omni-partisan support. Voters want you to pass this bill.

Americans are desperate for reform because this affects so many of us — it is a lived experience. Fifty-one percent of cancer patients report going into debt because of the price of their care, with chemotherapy and pharmacy drugs cited among the top reasons for that debt. “Financial toxicity” is a well-studied and common side effect of being a cancer patient.

The drug price reforms in the Inflation Reduction Act help patients have access to the drugs they need now and ensure the future drug innovation we need at prices we can afford. Time and again, PhRMA has tried to scare patients with threats that people will literally die because lower prices — even just slightly lower prices — will decimate innovation. But the Congressional Budget Office says the legislation will result in just 15 fewer new drugs out of 1,300 over the next 30 years. In its letter, PhRMA attempts to refute the CBO findings with an issue brief that is not peer-reviewed, and the funding for which, along with author conflicts, are not disclosed.

PhRMA threatens that this legislation will cripple the President’s Cancer Moonshot. But there is a reason we need ARPA-H to get the speed we are seeking in the quest for new cancer treatments and cures: PhRMA won’t invest in risky research on its own — taxpayers must underwrite and lay the groundwork for the industry so it can garner high profits with low risk. Every one of the 356 new drugs approved by the FDA from 2010-2019 was based in some part on research paid for by taxpayers through the National Institutes of Health.

For me this is personal. As a patient with incurable cancer, I need innovative new drugs, or I am going to die sooner than I hope. But drugs don’t work if people can’t afford them. That’s why the Inflation Reduction Act is so important to patients like me — it restores balance to give us the innovation we need at prices we can afford. 

PhRMA claims that drugs will not be available in the U.S. if we lower prices. That is just a red herring. Simply put, PhRMA prioritizes the United States to sell its drugs because we are the largest market in the world with the highest prices in the world. And after enactment of the Inflation Reduction Act, the U.S. will still be the largest market in the world with the highest prices in the world. It is silly to suggest that drug companies will not want to mine the vein of gold that is the U.S. pharmaceutical market.

But the statement that truly reveals PhRMA’s world view came not in the letter but in an interview with Politico about the letter. CEO Steve Ubl said, “Those members who vote for this bill will not get a free pass. We’ll do whatever we can to hold them accountable.” In other words, PhRMA believes members of Congress should ignore the will of the people — ignore the voters who elected them — and vote to maintain the industry’s power to dictate high prices to the American people. PhRMA places its profit ahead of the needs and wishes of the citizens of this country. And that says it all.

We want to be clear about this threat by PhRMA against members of Congress with the courage to stand up to the industry: You have the will of the people behind you. We will be there to make clear that when it came time to choose, you chose to stand with patients and the American people over multinational drug company bullies. 

On behalf of patients and the vast majority of the American people, stand with us and vote yes on the Inflation Reduction Act to lower drug prices. 

Sincerely,

David Mitchell

Cancer patient and founder of Patients For Affordable Drugs Now


Organizations Representing Patients, Consumers, Seniors, Unions, Small Businesses, Employers, Physicians, Nurses, And Disease And Human Rights Groups Demand Action 

WASHINGTON, D.C. — As the Senate prepares to vote on the Inflation Reduction Act, 77 organizations representing patients, consumers, seniors, unions, small businesses, employers, physicians, nurses, and disease advocacy and human rights organizations sent a letter to all Democrats in Congress urging them to immediately pass the historic prescription drug price reforms included in the Inflation Reduction Act.  

“We are poised to pass the largest and most consequential health care bill since the Affordable Care Act – an historic moment to finally put patients first by lowering prices of prescription drugs in this country,” said David Mitchell, a patient with incurable blood cancer whose drugs carry a list price of more than $900,000 per year and founder of Patients For Affordable Drugs Now. “When Congress finishes its work and passes these drug pricing reforms, they will move the nation in a new direction, providing savings to patients, taxpayers, workers, and employers. Americans who overwhelmingly support the legislation are watching expectantly for Congress to seize this opportunity and pass the drug pricing provisions now.”

This legislation will, for the first time, authorize Medicare to negotiate prices directly for some of the most expensive prescription medicines; institute a cap on out-of-pocket drug costs for Medicare beneficiaries; and limit annual price increases to stop price gouging by drug corporations. CBO estimates savings of almost $300 billion to the federal government alone. 

“Lowering prescription drug prices is the number one health issue Americans want to see solved, and we’re on the cusp of making that a reality,” Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer said. “AARP urges Congress to take action to allow Medicare to negotiate the price of prescription drugs for the first time, saving seniors thousands of dollars and needless hardship.” 

“Congress can make history in the next week by passing the most expansive and powerful reforms to help Americans afford prescription drugs since enactment of the Medicare Part D benefit in 2003,” the letter reads. “In a time of great division in our nation, this legislation has overwhelmingly bipartisan support. More than 70 percent of Republicans, Democrats, and independents back each of these reforms, which have consistently been the most popular element under discussion for reconciliation…Congress has repeatedly promised to address this problem, and the American people need the help now more than ever.” 

There is enthusiastic momentum to pass the drug price provisions in the Inflation Reduction Act. All Senate Democrats support them, and Majority Leader Schumer said Democrats are excited to advance the popular drug price reforms this weekend. Speaker Pelosi is expected to promptly bring the House back to vote on the legislation next week. On Thursday, nearly a third of the Democratic senators, including Majority Leader Schumer, joined advocacy groups on Capitol Hill for a press conference calling for the passage of the Inflation Reduction Act including the drug price reforms. President Biden is prepared to sign this package when it reaches his desk, fulfilling a promise and bringing relief to millions. 

Read the full letter and list of signers here and below.

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August 5, 2022

Dear Members of Congress,

Congress can make history in the next week by passing the most expansive and powerful reforms to help Americans afford prescription drugs since enactment of the Medicare Part D benefit in 2003. On behalf of more than 75 organizations representing patients, consumers, seniors, unions, small businesses, employers, physicians, nurses, and disease advocacy and human rights organizations, we urge the Senate to immediately pass the Inflation Reduction Act

The legislation is truly historic because for the first time ever it will:

In a time of great division in our nation this legislation has overwhelmingly bipartisan support. More than 70 percent of Republicans, Democrats, and independents back each of these reforms, which have consistently been the most popular element under discussion for reconciliation. Congress can pass these drug pricing reforms before the August recess and move the nation in a new direction, providing savings to patients, taxpayers, workers, and employers. CBO estimates savings of almost $300 billion to the Federal government alone.

Rising prices are a top concern for American families and employers. Undeterred by the financial hardship and health challenges facing Americans today as a result of the pandemic, drug companies have already raised the prices of their products almost 1,200 times in the first seven months of the year — more than in the same period in 2020 and 2021. 

Congress must seize this opportunity to stop the pharmaceutical industry from overcharging Americans with astronomical prices for brand-name drugs. Patients, workers, employers, and taxpayers should not continue to shoulder the burden of prices in this country that are nearly three timeswhat people in other comparable nations pay. 
 
Congress can make history in the next week. Pass the Inflation Reduction Actand send it to the President for his signature. Not only will it break the pharmaceutical industry’s unilateral power to dictate prices to the American people, it will save lives, improve health, curb the impact of inflation, and put more money back into the pockets of American seniors, workers, and businesses.
 
Congress has repeatedly promised to address this problem, and the American people need the help now more than ever. 

Signed:

AARP
AFGE Local 704 
AHEC West (Maryland Area Health Education Center West)
AIDS Healthcare Foundation 
Alliance for Retired Americans
Alliance of Community Health Plans
American Academy of Neurology
American Federation of Teachers
Black Health Commission 
Blue Shield of California
Building Back Together
Campaign for a Family Friendly Economy
Centennial State Prosperity
Center for American Progress
Center for Popular Democracy
Children’s Action Alliance
Colorado Consumer Health Initiative
Committee to Protect Health Care
Communications Workers of America
Community Catalyst
Consumer Action
COVID Survivors for Change
Crohn’s and Colitis Young Adults Network 
Democratic Disability Caucus of Florida 
Doctors for America
Families USA
For Our Future Action Fund
Generation Patient
Health Access CA
Health Care For All Massachusetts 
Health Care Voices
Heath Action New Mexico
Hispanic Federation
Honest Arizona
Human Rights Watch
Invest in America Action
Kentucky Voices for Health
KS Business Group on Health
Latino Victory
Lower Drug Prices Now 
Main Street Alliance
Maryland Health Care For All Coalition
Medicare for All Coalition
Medicare Rights Center
Metro New York Health Care for All
Missouri Health Care for All
MomsRising
MoveOn Civic Action
National Health Law Program
National MS Society
Network Lobby for Catholic Social Justice
New Jersey Citizen Action
Nurses for America
Oregonizers
Patients For Affordable Drugs Now
Pennsylvania Health Access Network
People’s Action 
Prescription Justice
Protect Our Care
Public Citizen 
R2H Action [Right to Health]
Salud y Farmacos
SEIU
Social Security Works
SWAA CT Coordinating committee 
T1International USA
TakeActionMN
Tennessee Health Care Campaign
The AIDS Taskforce of Greater Cleveland
The 99% Pennsylvania campaign of the Pennsylvania Budget and Policy Center
The Consortium
United States of Care
Universal Health Care Foundation of Connecticut
Unrig Our Economy
Voices for Progress
West Health Institute
West Virginians for Affordable Health Care

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New Reporting Exposes Big Pharma’s Lies On Inflation, Medicare Savings, And Generic Competition

WASHINGTON, D.C. —As Congress is poised to pass the largest health care bill since the Affordable Care Act, Big Pharma is using every scare tactic possible to try to stop the Inflation Reduction Act from passing. This week, independent experts debunked the industry’s lies about the drug price provisions’ impact on innovation, Medicare savings, and generic competition.

Here’s a round-up:  

  1. Inflation: Big Pharma falsely claims “prescription drug prices are not fueling inflation.”

2. Medicare Savings: Big Pharma falsely claims the bill will “strip $300 billion from Medicare.”

3. Generic Competition: The drug industry falsely claims that the bill will make less-expensive generic drugs less likely to come to market.

For more on debunking pharma, check out these resources

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