Organizations Representing Patients, Consumers, Seniors, Unions, Small Businesses, Employers, Physicians, Nurses, And Disease And Human Rights Groups Demand Action
WASHINGTON, D.C. — As the Senate prepares to vote on the Inflation Reduction Act, 77 organizations representing patients, consumers, seniors, unions, small businesses, employers, physicians, nurses, and disease advocacy and human rights organizations sent a letter to all Democrats in Congress urging them to immediately pass the historic prescription drug price reforms included in the Inflation Reduction Act.
“We are poised to pass the largest and most consequential health care bill since the Affordable Care Act – an historic moment to finally put patients first by lowering prices of prescription drugs in this country,” said David Mitchell, a patient with incurable blood cancer whose drugs carry a list price of more than $900,000 per year and founder of Patients For Affordable Drugs Now. “When Congress finishes its work and passes these drug pricing reforms, they will move the nation in a new direction, providing savings to patients, taxpayers, workers, and employers. Americans who overwhelmingly support the legislation are watching expectantly for Congress to seize this opportunity and pass the drug pricing provisions now.”
This legislation will, for the first time, authorize Medicare to negotiate prices directly for some of the most expensive prescription medicines; institute a cap on out-of-pocket drug costs for Medicare beneficiaries; and limit annual price increases to stop price gouging by drug corporations. CBO estimates savings of almost $300 billion to the federal government alone.
“Lowering prescription drug prices is the number one health issue Americans want to see solved, and we’re on the cusp of making that a reality,” Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer said. “AARP urges Congress to take action to allow Medicare to negotiate the price of prescription drugs for the first time, saving seniors thousands of dollars and needless hardship.”
“Congress can make history in the next week by passing the most expansive and powerful reforms to help Americans afford prescription drugs since enactment of the Medicare Part D benefit in 2003,” the letter reads. “In a time of great division in our nation, this legislation has overwhelmingly bipartisan support. More than 70 percent of Republicans, Democrats, and independents back each of these reforms, which have consistently been the most popular element under discussion for reconciliation…Congress has repeatedly promised to address this problem, and the American people need the help now more than ever.”
There is enthusiastic momentum to pass the drug price provisions in the Inflation Reduction Act. All Senate Democrats support them, and Majority Leader Schumer said Democrats are excited to advance the popular drug price reforms this weekend. Speaker Pelosi is expected to promptly bring the House back to vote on the legislation next week. On Thursday, nearly a third of the Democratic senators, including Majority Leader Schumer, joined advocacy groups on Capitol Hill for a press conference calling for the passage of the Inflation Reduction Act including the drug price reforms. President Biden is prepared to sign this package when it reaches his desk, fulfilling a promise and bringing relief to millions.
Read the full letter and list of signers here and below.
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August 5, 2022
Dear Members of Congress,
Congress can make history in the next week by passing the most expansive and powerful reforms to help Americans afford prescription drugs since enactment of the Medicare Part D benefit in 2003. On behalf of more than 75 organizations representing patients, consumers, seniors, unions, small businesses, employers, physicians, nurses, and disease advocacy and human rights organizations, we urge the Senate to immediately pass the Inflation Reduction Act.
The legislation is truly historic because for the first time ever it will:
- Require Medicare to negotiate directly with pharmaceutical corporations for lower drug prices — a reform that has been sought for almost 20 years;
- Discourage drug companies from increasing their prices faster than the rate of inflation, a reform that has special importance right now as we seek to curb the rising cost of everyday expenses;
- Cap annual out-of-pocket costs for Medicare beneficiaries at $2,000 when they are currently unlimited and can run to more than $15,000 and expand the Part D low-income subsidies by expanding the income threshold for eligibility from 135 percent to 150 percent of the federal poverty level.
In a time of great division in our nation this legislation has overwhelmingly bipartisan support. More than 70 percent of Republicans, Democrats, and independents back each of these reforms, which have consistently been the most popular element under discussion for reconciliation. Congress can pass these drug pricing reforms before the August recess and move the nation in a new direction, providing savings to patients, taxpayers, workers, and employers. CBO estimates savings of almost $300 billion to the Federal government alone.
Rising prices are a top concern for American families and employers. Undeterred by the financial hardship and health challenges facing Americans today as a result of the pandemic, drug companies have already raised the prices of their products almost 1,200 times in the first seven months of the year — more than in the same period in 2020 and 2021.
Congress must seize this opportunity to stop the pharmaceutical industry from overcharging Americans with astronomical prices for brand-name drugs. Patients, workers, employers, and taxpayers should not continue to shoulder the burden of prices in this country that are nearly three timeswhat people in other comparable nations pay.
Congress can make history in the next week. Pass the Inflation Reduction Actand send it to the President for his signature. Not only will it break the pharmaceutical industry’s unilateral power to dictate prices to the American people, it will save lives, improve health, curb the impact of inflation, and put more money back into the pockets of American seniors, workers, and businesses.
Congress has repeatedly promised to address this problem, and the American people need the help now more than ever.
Signed:
AARP
AFGE Local 704
AHEC West (Maryland Area Health Education Center West)
AIDS Healthcare Foundation
Alliance for Retired Americans
Alliance of Community Health Plans
American Academy of Neurology
American Federation of Teachers
Black Health Commission
Blue Shield of California
Building Back Together
Campaign for a Family Friendly Economy
Centennial State Prosperity
Center for American Progress
Center for Popular Democracy
Children’s Action Alliance
Colorado Consumer Health Initiative
Committee to Protect Health Care
Communications Workers of America
Community Catalyst
Consumer Action
COVID Survivors for Change
Crohn’s and Colitis Young Adults Network
Democratic Disability Caucus of Florida
Doctors for America
Families USA
For Our Future Action Fund
Generation Patient
Health Access CA
Health Care For All Massachusetts
Health Care Voices
Heath Action New Mexico
Hispanic Federation
Honest Arizona
Human Rights Watch
Invest in America Action
Kentucky Voices for Health
KS Business Group on Health
Latino Victory
Lower Drug Prices Now
Main Street Alliance
Maryland Health Care For All Coalition
Medicare for All Coalition
Medicare Rights Center
Metro New York Health Care for All
Missouri Health Care for All
MomsRising
MoveOn Civic Action
National Health Law Program
National MS Society
Network Lobby for Catholic Social Justice
New Jersey Citizen Action
Nurses for America
Oregonizers
Patients For Affordable Drugs Now
Pennsylvania Health Access Network
People’s Action
Prescription Justice
Protect Our Care
Public Citizen
R2H Action [Right to Health]
Salud y Farmacos
SEIU
Social Security Works
SWAA CT Coordinating committee
T1International USA
TakeActionMN
Tennessee Health Care Campaign
The AIDS Taskforce of Greater Cleveland
The 99% Pennsylvania campaign of the Pennsylvania Budget and Policy Center
The Consortium
United States of Care
Universal Health Care Foundation of Connecticut
Unrig Our Economy
Voices for Progress
West Health Institute
West Virginians for Affordable Health Care
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New Reporting Exposes Big Pharma’s Lies On Inflation, Medicare Savings, And Generic Competition
WASHINGTON, D.C. —As Congress is poised to pass the largest health care bill since the Affordable Care Act, Big Pharma is using every scare tactic possible to try to stop the Inflation Reduction Act from passing. This week, independent experts debunked the industry’s lies about the drug price provisions’ impact on innovation, Medicare savings, and generic competition.
Here’s a round-up:
- Inflation: Big Pharma falsely claims “prescription drug prices are not fueling inflation.”
- This claim relies on false data that bundles generic and brand-name hikes. A new report from the non-profit, nonpartisan Committee for a Responsible Federal Budget found that the economic impact of the drug price reforms would be “very deflationary,” underscoring the contribution of rising drug prices to inflation and highlighting how lower prices will fight inflation.
- A letter released this week by 126 top economists also concludes that the drug price provisions in the Inflation Reduction Act will put “downward pressure on inflation.”
2. Medicare Savings: Big Pharma falsely claims the bill will “strip $300 billion from Medicare.”
- The nonpartisan Committee For Responsible Federal Budget released a report this week that called the ads “misleading” and showed the government would save nearly $300 billion while improving benefits and saving patients and taxpayers billions.
- According to the Congressional Budget Office, the drug price measures will save Medicare, taxpayers, and patients nearly $300 billion by lowering drug prices and reining in spending. Both the Washington Post and Kaiser Health News with Politifact debunked this claim earlier this summer.
3. Generic Competition: The drug industry falsely claims that the bill will make less-expensive generic drugs less likely to come to market.
- An Axios article explains that the Medicare negotiation provisions in the Inflation Reduction Act actually promote generic and biosimilar competition by disincentivizing the brand-drug company patent gaming that blocks competition and keeps prices high. A brand-name drug is only eligible for negotiation if it does not face generic competition, encouraging generics to come to market and use market forces to drive down drug prices.
For more on debunking pharma, check out these resources.
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Like Beyoncé, drug pricing reform is having a renaissance.
Welcome to the Week in Review.
1. Drug Pricing Remains In Dems’ Latest Reconciliation Deal
- The historic drug pricing reforms are included as a key feature of the new reconciliation package announced by Majority Leader Schumer and Senator Manchin this week. All eyes are on Dems as they work to pass the new package, which Speaker Pelosi signaled support for in the House. President Biden said he is prepared to sign the package when it reaches his desk and called the reforms “a godsend.” The Senate Democratic Policy and Communications Committee held a press conference featuring Chairwoman Stabenow, Chairman Wyden, and Senator Klobuchar rallying around the drug pricing reforms, which would deliver “significant relief” to patients with expensive drugs. “Next week we are going to come together and get this done,” declared Chairwoman Stabenow. Bloomberg’s Editorial Board summarized it well calling the drug price provisions “a momentous achievement.” (P4ADNow, WaPo, Bloomberg)
2. Big Pharma Back With Big Lies
- Kaiser Health News and Politifact rated a new ad from PhRMA-funded group, American Commitment, attacking the drug price provisions under consideration in the Senate as false. The ad’s claims that the provisions will divert billions of dollars away from Medicare are simply untrue — instead, the plan would save money for both Medicare and patients. Big Pharma is pumping millions into campaigns to oppose drug pricing reforms as Congress moves forward with plans to rein in the industry’s unfettered pricing power and lower drug prices for patients. The time for change is now. (KHN)
3. Savings Of Billions For Millions
- Americans, patients, doctors, and voters alike, know exactly how much their lives will change when Congress passes the comprehensive drug price reforms in the Inflation Reduction Act. Millions of patients will be delivered relief thanks to the $2,000 out-of-pocket cap for Medicare Part D beneficiaries, expanded low-income subsidies, curbs to drug corporation price gouging, and, of course, Medicare’s newly granted ability to negotiate directly for lower drug prices. “For the first time, if drug manufacturers raise their prices faster than inflation, they will be subject to a steep penalty. This is enormously important, as rising prices are a kitchen table concern,” explains P4ADNow’s Sarah Kaminer Bourland. A new poll from Data For Progress found that voters are more likely to support a candidate for U.S. Congress if they support plans to lower drug prices. “Passing this bill will take me out of the danger zone and I could go back on the Copaxone at an affordable price, and there are so many of us out here,” shared MS patient Therese Ball from Indiana about the medication she needs to manage her condition. Congress must get these reforms across the finish line. (Healio, KFF, Spectrum New 1, Data for Progress)
Have a great weekend, everyone!
Chairwoman Stabenow, Chairman Wyden, Senator Klobuchar, AARP CEO Jo Ann Jenkins, P4ADNow Founder David Mitchell, And Patient Advocate Highlight Need For Lower Rx Prices
WASHINGTON, D.C. — As the parliamentarian reviews the drug pricing reforms in the reconciliation package, Senate Democratic Policy and Communications Committee (DPCC) Chairwoman Debbie Stabenow (D-MI), Chairman Ron Wyden (D-OR), and Senator Amy Klobuchar (D-MN) hosted a press conference yesterday highlighting the need to pass the historic provisions. In addition to the senators, the event included remarks supporting the reforms from AARP CEO Jo Ann Jenkins, P4ADNow Founder David Mitchell, and retired law enforcement officer living with Parkinson’s disease, Larry Zarzecki.
“The legislation now before the Senate will deliver truly historic reforms. Congress must seize this opportunity to help Americans,” David Mitchell, a patient with incurable blood cancer whose drugs carry a list price of more than $900,000 per year and founder of Patients For Affordable Drugs Now, said at the event. “Leader Schumer says Senate Democrats are ready to pass the legislation. Speaker Pelosi says the House will support it. The President says he is ready to sign it. The votes are there. It’s time to get it done.”
The legislation will, for the first time, authorize Medicare to negotiate prices directly for some of the most expensive prescription medicines; institute a cap on out-of-pocket drug costs for Medicare beneficiaries; and limit annual price increases to stop price gouging by drug corporations. CBO estimates savings of almost $300 billion to the federal government alone. It is a central feature of the new reconciliation package announced yesterday by Majority Leader Schumer and Senator Manchin.
There is enthusiastic momentum to pass these provisions – all Senate Democrats support them, Majority Leader Schumer said Democrats are excited to advance the popular drug pricing reforms, Senator Klobuchar held a press conference reiterating the enthusiasm, and President Biden is prepared to sign this package when it reaches his desk, bringing relief to millions.
Watch the full press conference here.
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Little Miss Lowering Drug Prices would like to say:
Welcome to the Week in Review.
1. On the Fast Track to Lower Prices
- The path to reconciliation is clearer than ever with Senate Majority Leader Schumer saying that Democrats are moving ahead with a reconciliation package including the popular drug pricing reforms. “This is something we’ve waited for for a very long time and is going to be a major, major accomplishment,” remarked Leader Schumer at a press briefing earlier this week. Senator Klobuchar, a longtime congressional champion for drug pricing reform, held a press conference reiterating the enthusiasm and saying she believes that the Senate will pass drug pricing reform in just a few weeks. The provisions are deeply needed as Americans, on average, pay $1,300 each year for prescription drugs — more than any other country in the world. Big Pharma is waging a “last-ditch” effort to oppose the bills, with biopharma CEOs gathering in D.C. this week and the industry spending over $100 million in lobbying this year alone. The provisions, however, are “enormously popular” with Americans and would provide “a substantial impact” and “tangible benefits” to patients across the country. It’s time for Congress to get it done. (Bloomberg, WaPo, STAT, Protect Our Care, NYT)
2. Big Pharma Raising Prices Once Again
- In the third year of the pandemic and as Americans grapple with record inflation, Big Pharma continues to raise prices and exploit patients, according to a new report from P4AD which examined drug corporations’ most recent price hikes. The pharmaceutical industry has hiked drug prices 1,186 times this year, exceeding the number of price hikes during the same period in 2020 and 2021. P4AD highlights four drugs with price hikes this month, including Benlysta, which now has a monthly price tag of $4,282. “I’ve had to spend my entire paycheck on my medications, and with the price increasing again, I worry about how I’ll make ends meet while still affording my drugs,” shares Ashley Suder, a patient in Morgantown, WV, who takes Benlysta to manage her lupus. The report demonstrates why urgent congressional action is needed to address Big Pharma’s abusive pricing practices and outlines ten reasons why Congress must pass legislation to lower drug prices now. (P4AD, Common Dreams)
3. Pass Popular Drug Price Provisions Now
- This week patients, experts, advocates, seniors, and voters called on Congress to pass a reconciliation package with historic drug price reforms before the August recess. The package of reforms is overwhelmingly popular, and a new poll from AARP finds that voters greatly prefer congressional candidates who want to allow Medicare to negotiate lower prescription drug prices. Protect Our Care, AARP, P4ADNow, the National MS Society, and patients held a press call on Thursday that highlighted the historic nature of the package and how the reforms will deliver real relief to patients. “When I went on Medicare, I could not afford the over $7,000 a year for my MS DMT and had to stop my medication. My decision was based on money, not medicine. The proposals will help me tremendously,” shared Judy Wilson, a multiple sclerosis patient and activist. Americans are clear: The time for change is now. (The Cap Times, Navigator, AARP, P4ADNow)
One more thing: This week the Congressional Budget Office found that the FDA User Fee Reauthorization Act passed by a bipartisan majority of senators on the HELP Committee last month saves $1.4 billion thanks to a series of bipartisan amendments that speed generics to market and promote competition. But last week, HELP Ranking Member Burr introduced an alternative version of the bill that strips the package of the bipartisan drug pricing amendments. The senator is standing with his drug industry allies to keep drug prices high. We are standing with Chairwoman Murray who is fighting to pass a package that includes these critical reforms.
Have a great weekend, everyone!
Experts And Patients Held Press Call As Parliamentarian Reviews Biggest Health Care Bill Since ACA
WASHINGTON, D.C. — As the drug pricing provisions in the reconciliation package are being reviewed by the parliamentarian, drug pricing experts and patients held a press call today and walked through the impact that the historic reforms will have on Americans. Below is a quick round up of notable quotes and you can find a 2-pager that explains the drug pricing provisions here.
Here’s a roundup of quotes from participating organizations and speakers on the call:
- “This reconciliation bill is historic and will lower prescription drug costs for millions,” said Protect Our Care Chair Leslie Dach. “Americans pay three times more for the same drugs as people do in other countries while drug companies make record-breaking profits. In the wealthiest nation on earth, no one should have to choose between putting food on the table and affording the medications they need to survive. The American people cannot wait any longer – it’s time to say no to Big Pharma and yes to America’s seniors and patients.”
- “Seniors are hurting from the rising cost of groceries and gas – and they’ve already suffered for years at the pharmacy counter. Congress is on the verge of passing reforms that will finally allow Medicare to negotiate lower drug prices and put a cap on seniors’ out-of-pocket spending for prescriptions. We urge the Senate to stand up to Big Pharma and their army of lobbyists and pass this historic legislation.” —Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer
- “The drug price reforms under consideration by the Senate right now are historic. They will, for the first time, bring an end to pharma’s unfettered pricing power and let Medicare negotiate lower prices, curb price gouging, and cap out-of-pocket costs for patients. We have been waiting nearly 20 years for these reforms; this is the biggest health care package since the Affordable Care Act. It’s time for Congress to get the job done.” —David Mitchell, cancer patient and founder of Patients For Affordable Drugs Now
- “Living with multiple conditions brings a host of expensive drugs — to afford mine I work multiple drugs … Januvia alone carries a monthly list price of $521 and was the fourth most costly drug for Medicare Part D in 2020. I live in fear of my high drug prices. Under the Senate drug pricing package, expensive drugs like Januvia would be eligible for negotiation under Medicare, bringing lower prices for patients like me and savings for Medicare.” —Steven Hadfield, cancer and type 2 diabetes patient
- “When I went on Medicare, I could not afford the over $7,000 a year for my MS DMT and had to stop my medication. My decision was based on money, not medicine. The proposals will help me tremendously. Although even $2,000 per year out-of-pocket is a lot of money, that cap on what I would have to spend on prescription drugs would allow me to afford to get back on my medication and I won’t have to worry about my MS progressing. Being able to spread out the $2,000 throughout the year, so I don’t have to worry about paying all of it in the first few months would be a huge relief for me. These things will immediately improve my quality of life and my health.” – Judy Wilson, multiple sclerosis patient and activist
- “Lowering drug prices means that we have more opportunities to pursue higher education and careers, and have at least some stability when we can’t control our health. For me, the inflation cap provision would mean that drug companies would no longer be allowed to increase the price of my medications infinitely. The predictability of my drug pricing would be monumental for me. This critical moment is important for us as young adult patients who see this legislation as a vehicle to enabling the empowerment of our generation of patients and those to come.” —Sneha Dave, executive director Generation Patient and ulcerative colitis patient
You can find a policy explainer of what is in the drug pricing provisions here.
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When I text you ? ?? it means we are going to take on Big Pharma and lower drug prices.
Welcome to the Week in Review.
1. Drug Pricing At The Center Of Reconciliation
- We are on the verge of a massive win for patients. Yesterday, President Biden called on Congress to pass a reconciliation package with the drug price reforms currently in the Senate. With clear support from Senator Manchin and all other Senate Democrats, the drug pricing provisions have a path to passage once the parliamentarian finishes her review. These historic provisions would finally rein in prescription drug prices for American families, saving $288 billion over the next decade. “Let’s bring down prescription drug prices,” said Secretary Raimondo on ABC News. “If you put on the floor a bill that reduces prescription drug prices, we would be both reducing inflation and reducing one of the most painful monthly costs that face millions and millions of families,” Senator Chris Coons said. Center For American Progress put it well: “After decades of inaction, Congress cannot let this effort for reform come and go.” (Politico, Axios, ABC News, CAP)
2. Patients Are United: Affordable Drugs Now
- A new survey shows overwhelming, bipartisan support for the prescription drug pricing policies proposed by the Senate – 7 out of ten voters support these historic provisions that include allowing Medicare to negotiate drug prices. Ulcerative colitis patient Kolton Chapman shared his experience struggling to balance chronic disease, paying for schooling, and the high prices of his prescription drugs. “I was going to have to pick between paying for my school or paying for my meds,” he shared with the Ohio Capital Journal. “And I need my meds to stay alive.” No one should have to choose between their health and their schooling. Patients like Kolton are counting on Congress to lower drug prices by passing the popular provisions in the reconciliation package now. (Morning Consult, Ohio Capital Journal)
3. Pharma Inflating Lies
- A report published this week found that PhRMA and top pharmaceutical companies have spent $147.3 million lobbying Congress against lowering drug prices since 2020. We’re not surprised – Big Pharma is doubling down on its outrageous spending, as drug pricing reforms are closer than ever to passing. The industry continues to spread lies about the provisions, saying, “prescription drug prices are not contributing to inflation,” a false claim that relies on misleading data that bundles generic prices with brand-named prices. Don’t just take our word for it. Treasury Secretary Yellen remarked on Thursday that current Senate drug pricing reforms would lower “the cost of one of the most expensive items in [Americans’] budgets” and be a “very positive way of addressing inflation.” Americans aren’t fooled by pharma fear-mongering – we have our eye on the ball to lower drug prices and bring relief to American families by passing comprehensive reforms. (Common Dreams, P4ADNow)
Have a great weekend, everyone!
Welcome to the Week in Review.
1. Ready For Reconciling
- In the greatest indication of momentum yet, Senate Democrats submitted the latest text of their comprehensive drug pricing reforms to the Senate Parliamentarian this week — the next step in its path to passage through reconciliation. The legislation, which is supported by all 50 Senate Democrats and over 80 percent of Americans, will deliver relief from high drug prices for millions of patients by allowing Medicare to negotiate directly for lower drug prices, curbing drug company price gouging, and capping out-of-pocket costs for Medicare Part D beneficiaries. The CBO found that the new legislation will save taxpayers over $287 billion over 10 years and again debunked one of Big Pharma’s favorite myths, finding the legislation would decrease the number of new drugs coming to market by under 1 percent — not the nuclear winter depicted by the drug industry. Patients know the truth: We can have the innovation we need at prices we can afford. There is no time to wait, the Senate needs to get it done now. (Punchbowl News)
2. AbbVie Up To No Good
- A report from the Senate Finance Committee this week found that drug giant AbbVie has been gaming the system by charging high prices, bringing in record revenues, and then avoiding U.S. taxes. The report finds that the U.S. is responsible for 75 percent of the pharma company’s sales, yet AbbVie reported just one percent of that for the purposes of U.S. income taxes. Big Pharma’s main goal? Big profits. (Washington Post)
3. Raising Prices Because They Can
- In a much welcomed collaboration, the U.S. Patent and Trademark Office (USPTO) and the Food and Drug Administration (FDA) are joining forcesto crack down on pharmaceutical companies’ manipulation of our patent system. Right now, corporations abuse the system in order to impede competition and keep prices high. The new effort is a result of President Biden’s 2021 executive order calling on the USPTO and FDA to collaborate on patent reforms that promote competition and encourage true innovation. Patent shenanigans by drug corporations have increased the price of some prescription medications by more than 300 percent— leaving patients struggling to afford their medications while pharma executives pad their bottom line. Patients are grateful for this much needed oversight. (USPTO, Mad In America)
Have a great weekend, everyone!