The ORPHAN Cures Act is proving even more destructive than initially reported.
News Aug 1, 2025Despite one in three Americans being unable to afford their prescription drugs, pharma companies raised prices in July on over 150 brand-name medications as part of their mid-year price hikes.
Press Releases Aug 1, 2025Patients For Affordable Drugs Now Executive Director Merith Basey issued the following statement in response to letters sent by President Trump to 17 major pharmaceutical companies regarding his Most…
News Jul 25, 2025The FDA is continuing to build out its new priority review voucher program, now formally adding “affordability” as one of the priority criteria when considering vouchers.
News Jul 18, 2025This week, CMS announced that 33 states, DC, and Puerto Rico will join an initiative intended to improve access and lower costs for gene therapies for sickle cell disease (SCD), a condition that…
News Jul 11, 2025Last week, five P4AD Patient Advocates participated in a roundtable with HHS Secretary Kennedy and NIH Director Bhattacharya, focused on the burden of high drug prices and the administration’s…
News Jul 3, 2025Today, the House passed a reconciliation bill that includes a nearly $5 billion giveaway to the pharmaceutical industry: the ORPHAN Cures Act, just a day after the Senate passed the same legislation…
Press Releases Jul 3, 2025Today, the House passed a reconciliation bill that includes a nearly $5 billion giveaway to the pharmaceutical industry: the ORPHAN Cures Act.
Press Releases Jul 1, 2025Today, the Senate passed a reconciliation bill that includes a nearly $5 billion giveaway to the pharmaceutical industry: the ORPHAN Cures Act.
Press Releases Jun 28, 2025Just days after patients won a critical victory to keep the ORPHAN Cures Act out of the Senate reconciliation bill text, lawmakers have reinserted this harmful, pharma-backed proposal into the proposed final text.
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