Latest News | Aug 16, 2021

The Week in Review in Prescription Drug Pricing

He’s not Biden his time — the president wants Medicare negotiation now. 
Welcome to the Week in Review.

1. “We Have To Change This. And We Can.”

2. The Power Of Our Stories

3. A Path Forward

4. “It’s Killing Americans”

5. PhRMA’s Nose Grows

WASHINGTON, D.C. — Patients For Affordable Drugs Now announced it is launching two new national ads this weekend calling on Congress to lower drug prices by allowing Medicare negotiation. The six-figure push will start on Aug. 15 and run on CNN and MSNBC throughout August recess. The campaign includes two ads that feature patients who have struggled to afford their prescription drugs, as well as a new website hub for patient advocates to contact their members of Congress to demand passage of legislation to lower drug prices.

“Yesterday, we heard President Biden’s emphatic support for Congress to pass legislation to allow Medicare to negotiate lower drug prices, a crucial part of his Build Back Better plan,” said David Mitchell, a cancer patient and founder of Patients For Affordable Drugs Now. “Mr. President, patients couldn’t agree more; members of Congress must deliver reforms that 90 percent of Americans support and pass legislation to allow Medicare to negotiate lower prices on behalf of Americans. As the president said, ‘We have to change this. And we can.’”

The first ad highlights three patient advocates: Steven, a blood cancer patient in Charlotte, North Carolina, who is prescribed a medication priced at $132,000 a year; Ashley, a psoriatic arthritis patient in Houston who relied on Humira, which is currently priced at $5,968 a month; and Gail, a type 1 diabetes patient in Denver who takes insulin priced at $280 per vial. 

“No one should have to drain their bank account for relief,” Ashley says in the ad. “The system is broken.”

“The prices keep going up,” adds Gail, who recently met with President Biden to share her story of living with high drug prices. “It’s killing Americans.”

Watch the first ad here.

The second ad highlights Ashley; Jackie, a cancer patient in Muskego, Wisconsin, whose treatment, Revlimid, is priced at over $20,000 per month; and Marcus, who lives with type 1 diabetes in Cincinnati and struggles to afford his insulin. 

“Because insulin is so expensive, I’ve had to skip and ration my doses,” Marcus, a husband, father, and minister says in the ad.

“It’s really simple,” Ashley explains. “Prescription drugs don’t work if people can’t afford them.”

Watch the second ad here.

Both ads will run on cable and end with the message, “Right now, there’s a plan in Congress to let Medicare negotiate lower drug prices. 90 percent of Americans support it. Tell Congress: Let Medicare negotiate now.”

This campaign launch comes on the heels of the Senate’s vote to move forward with drafting a legislative package to deliver on the president’s Build Back Better plan, which includes lowering drug prices through Medicare negotiation. In the House of Representatives, H.R. 3, which would allow Medicare to negotiate lower drug prices on behalf of all Americans, was reintroduced in April. The Senate Finance Committee is reportedly working on similar proposals that would allow Medicare to negotiate. 

P4ADNow’s new tool — MedicareNegotiation.org —is a hub for patients to advocate for Congress to pass legislation to allow Medicare to negotiate lower drug prices. It includes guidance for contacting members of Congress and writing a letter to the editor to local publications in support of Medicare negotiation.

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WASHINGTON, D.C. — Gail deVore, a small business owner and volunteer patient advocate with Patients For Affordable Drugs Now, met with President Biden this month to share her story of living with high drug prices and to discuss the president’s Build Back Better plan, which would allow Medicare to negotiate lower prescription drug prices. Gail, from Denver, lives with type 1 diabetes and takes insulin produced by ​​Novolog, which is priced at $289 per vial. 

Following Gail’s one-on-one meeting with President Biden in the Oval Office, Gail’s powerful story was highlighted during the president’s speech, in a new White House video, and in a Twitter takeover. Below is a recap.

Gail in President Biden’s speech

Today, President Biden shared Gail’s story in a speech on how his Build Back Better agenda will lower prescription drug prices by allowing Medicare to negotiate.


“Last week in the Oval Office, I hosted a small business owner named Gail from Denver. She’s 60 years old. When she was 11, she was diagnosed with type 1 diabetes. For nearly 50 years, she’s had to take insulin to stay alive. Do you know what she told me? She said she doesn’t worry about becoming blind or her blood sugar dropping dangerously low, the natural worries of anyone with type 1 diabetes. She worries about being able to pay for her prescription drugs.” 


The president continued:


“And Gail is not alone. It is estimated that more than 34 million Americans, 10 percent of the population of the United States, have diabetes, including more than 1.5 million of those that have type 1 diabetes. And the outrageous cost affecting everyone across the board, spanning every kind of condition and disease, is similar … These prices put the squeeze on too many families and strip them of their dignity … Medicare is going to negotiate a fair price!’


This speech comes on the heels of the Senate’s vote to move forward with drafting a legislative package to deliver on the president’s Build Back Better plan, which includes lowering drug prices through Medicare negotiation. In the House of Representatives, H.R. 3, which would allow Medicare to negotiate lower drug prices on behalf of all Americans, was reintroduced in April. The Senate Finance Committee is reportedly working on similar proposals that would allow Medicare to negotiate. 

Gail at the White House video

This morning, the White House released a 90-second video highlighting Gail’s conversation with President Biden. 

“In 2001, insulin was $39 a bottle — the same exact bottle of insulin with the same exact formula. The list price is now $280 a bottle,” Gail told the president. “Insulin is every day, every week, every month, every year for the rest of my life.” 

The president responded, “In my view, health care is not a privilege. It should be a right. The only thing that Medicare is not allowed to negotiate for a price is a prescription drug. Only exception,” he continued. “And it’s long past time we change that. But to really solve the solution, Congress needs to act.”

Watch the full video here

Gail’s Twitter takeover

Gail was also invited by the White House to take over its official Twitter account to share her personal story following the video release. See tweets below:

Gail is available to speak with press upon request.

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WASHINGTON, D.C. — The following statement was issued by David Mitchell, a cancer patient and founder of Patients For Affordable Drugs Now, in response to President Biden’s speech on how his Build Back Better agenda will lower prescription drug prices: 

“President Biden’s speech today adds powerful momentum for reforms to lower prescription drug prices and for direct Medicare negotiation specifically. He couldn’t have said it more clearly: ‘These prices put the squeeze on too many families and strip them of their dignity … Medicare is going to negotiate a fair price!’ His conversation with patient advocate Gail deVore demonstrated once again that this president understands and will use the power of his office to achieve reforms we need and 90 percent of Americans support.

“The president also offered important details on his approach that we support, including focusing on a subset of expensive drugs, creating a framework for what constitutes a fair price to guide negotiators, powerful incentives to ensure companies agree to a reasonable price, penalties for raising prices faster than inflation, making lower negotiated prices available in the private sector, and capping out-of-pocket costs for patients. These comprise a strong, comprehensive set of policies to help all Americans.

“Today, I am more optimistic than ever that we are going to get this done.”

Background:

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Climbing made its debut at the Olympics this week, but we’ve been watching drug prices ascend to new heights for years. 

Welcome to the Week in Review.

1. Seniors Vote Yes On Medicare Negotiation

2. Sounding Off: Letters For Lower Drug Prices

3. AbbVie’s Patent Abuses

If price hikes were an Olympic event, pharma would take gold, silver, and bronze.

Welcome to the Week in Review.

1. Putting The Brakes On Patent Abuse

2. 100 Years Later, A $100 Biosimilar

3. Rep. Peters’ Flip Flop: Unforgivable

One more thing: This week, members of Congress highlighted pharma’s July price hikes and the need for Medicare to negotiate lower prices. Check it out here.

WASHINGTON, D.C. — The following statement was issued by David Mitchell, a cancer patient and founder of Patients For Affordable Drugs Now, in response to the Senate Judiciary Committee’s bipartisan, unanimous passage of a package of four bills that would lower drug prices and promote innovation by curbing anticompetitive behavior by pharmaceutical corporations: 

“We applaud Chairman Durbin, Ranking Member Grassley, and members of the Senate Judiciary Committee for passing legislation to crack down on anticompetitive drug industry practices and strengthen incentives for true biomedical innovation. This package of bills takes important steps to address abuses of our patent system that inhibit innovation, block competition, and allow drug corporations to raise prices without restraint. 

“Today’s unanimous vote also lends important momentum to the larger work in Congress to fix our broken drug pricing system. We will continue to work with Congress this year to enact other needed reforms, including allowing Medicare to negotiate lower drug prices for all Americans.”

Background:

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My name is Vanessa Ladson and I’m from Dover, DE. I need to take 12 medications a day to manage multiple conditions, including fibromyalgia and lupus, which is an autoimmune disease where my body’s immune system attacks healthy tissue. To manage these conditions, I need the drugs Plaquenil and gabapentin. I also take an incredibly pricey medication called Eliquis, which prevents blood clots. These three key medications cost me up to $500 out-of-pocket each month. These prices create an incredible financial strain as my income from Social Security and a small retirement fund is only $2,100 a month. 

My husband also lives with prostate cancer and is prescribed the drug Xtandi. He gets some assistance, but it’s horrible to think of what would happen if it were to go away. 

Both of us are on Medicare. At times, it feels like I’m robbing Peter to pay Paul to afford my medications. I’ve had to ask my grown children for help in order to afford my prescriptions at times, which I hate having to do. 

I have to scrimp and save to afford to eat. But I know other senior citizens who are much worse off — some are even eating cat food to be able to afford their drugs. But it’s a catch-22: If they don’t eat, they’ll die, and if they don’t have their medications, they die. My husband and I try to help by making them food when we can.

I’ve been depressed living with these physical conditions and dealing with all these high prices at the same time. Simply put, I don’t live the kind of life I want to live. With multiple conditions, I already live with uncertainty as to the type of pain I might face day to day. I should be able to afford medicines without so much worry on top of my illnesses and symptoms.

Other countries help out their seniors. As the richest country in the world, the United States should be able to take care of us. We need to let Medicare negotiate for the prices of our medications like other wealthy nations do.