Latest News | Aug 14, 2023

The Week in Review in Prescription Drug Pricing

Welcome to the Week in Review.

1.  Report Update: Hiding In Plain Sight

 2.  Momentum For Drug Price Reforms In Senate

3.   The Inflation Reduction Act Brings On The Savings!

BONUS: In this edition of Big Pharma’s shady behavior: Drug companies shift profits overseas to low-tax jurisdictions in order to line their coffers with billions of dollars. People in the United States pay some of the highest drug prices in the world and receive “none of the benefits” from the U.S. pharmaceutical industry, reportedBusiness Insider.

Have a great weekend! 

(SPANISH BELOW)

I am Lionel Mares, from Sun Valley, CA, a patient advocate speaking in honor of my late mother. As her caregiver, I witnessed first hand the impact of high drug prices on our family.

My mother who unfortunately passed in April 2020, was a Type 2 diabetic patient who took medication to control her blood sugar and other related illnesses, while also being on dialysis. Even though she was on Medicare coverage, the cost of her copays were still very expensive nonetheless. 

We struggled to afford her insulin ranging from NovoLog, Humalog, and Lantus, at times when we had to cover a higher portion of its high price, despite her Medicare coverage. My mother was very ill and suffered tremendously, something I would not wish on anyone else to feel or witness. 

As her caregiver, I took on the financial responsibility to cover the costs of her medications when Medicare did not. The financial toll the high prices of these medications had severely affected me and my family’s financial situation. 

I, thankfully, have not needed any significant medical attention that would succumb me to expensive medication prices while being a patient on Medi-Cal, a California Medicaid healthcare program. I realize the privilege I have as a healthy individual, but I strongly remain passionate about spreading awareness and getting involved in helping make prescription drugs affordable, as I know that would have benefitted my mother earlier and helped many other patients before and after her make surviving easier. 

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Soy Lionel Mares, de Sun Valley, CA, un defensor de pacientes que habla en honor de mi madre fallecida, de quien yo era su cuidador. 

Mi madre, quien lamentablemente falleció en 2020, era una paciente diabética Tipo 2 que tomaba medicamentos para controlar su azúcar en la sangre y otras enfermedades relacionadas, mientras también estaba en diálisis. A pesar de tener la cubierta de Medicare, el costo de sus copagos seguía siendo muy caro. 

Siempre tuvimos dificultades para pagar su insulina de NovoLog, Humalog, o Lantus, siempre y más aun cuando se clasificaba de manera diferente en el sistema de niveles del formulario de Medicare. Mi madre estaba muy enferma y sufrió tremendamente, algo que no desearía que nadie más sintiera o presenciara. 

Como su cuidador, asumí la responsabilidad financiera de cubrir las diferencias de sus medicamentos cuando Medicare no podía. La carga financiera que tenían los altos precios de estos medicamentos afectó gravemente mi situacion financiera y la de mi familia. 

Yo, afortunadamente, no he tenido la necesidad de ninguna atención médica significativa que me hiciera sucumbir a los altos precios de los medicamentos mientras siendo un paciente de Medi-Cal, un programa de atención médica de Medicaid de California. Me doy cuenta del privilegio que tengo como persona sana, pero sigo apasionado por difundir la conciencia y participar en ayudar a que los medicamentos recetados sean asequibles, ya que sé que eso habría beneficiado a mi madre antes y ayudado a muchos otros pacientes antes y después de ella, a sobrevivir.

I am David Bayne, from Conway, South Carolina, and am speaking on behalf of my family who has been affected by the high cost of prescription drugs. 

My wife, Bonnie, is a patient with COPD (or chronic obstructive pulmonary disease) taking TRELEGY, a tier three drug on Medicare’s formulary. Because of the high price, even with our Medicare insurance coverage, we face high out-of-pocket costs. In January of 2021, Bonnie’s 90-day prescription of TRELEGY increased in price from $1,801.54 to $1,896.36, and then further increased to $1,999.24 in 2022. I have constantly shared our experience of high price drugs with my three congressional representatives and have been utterly disappointed that they have done nothing but parrot what I believe to be “Big Pharma” lines and lies. 

Because of the high price of Trelegy, we have resorted to ordering Bonnie’s Trelegy prescription through a Canadian pharmacy in Vancouver, Canada, where we pay an out of pocket expense of $265 rather than the $505.26 out of pocket expense through Medicare for the same prescription. This should not be the case. Americans should be able to access their medicines within the American healthcare system.

My experience with the high price of prescription drugs, unfortunately, does not end or start with my wife Bonnie’s experience. Years ago, my wife and I had to navigate the challenges of our son becoming a paraplegic and our daughter being diagnosed with acute promyelocytic leukemia (APL) which nearly killed her. At the end of our daughter’s cancer treatment, the costs totaled $1.3 million dollars before insurance. After insurance, her expected out-of-pocket costs also put us as a family in a state of financial difficulty. 

There is another federal prescription drug purchasing program. The Office of Purchasing, Logistics and Acquisition.(OPAL.) This program is used by the Department of Defence, VA, Indian Affairs and Coast Guard. I know negotiation with drug companies is an effective way to majorly lower drug prices. That is because the VA negotiates directly with drug companies and successfully obtains steep discounts.

The cost difference to the U.S. taxpayers and patients, prior to price negotiation, are in the hundreds of million dollars a year. These experiences are what have led me to my personal fight in lowering prescription drug prices and contacting my elected officials until legislation is passed. 

Happy 58th Birthday, Medicare! Only 7 more years until you’re eligible for yourself 🥳

Welcome to the Week in Review.

1.  The Inflation Reduction Act: Building on Medicare’s Reach To Patients

 2.  Buildup To September’s Congressional Session

3.  Patent Abuse: “Profits At Any Price”

BONUS: P4AD submitted comments to the NIH ahead of its workshop Monday, calling on the agency to address the issue of fair pricing for all NIH and taxpayer-funded drugs and make the workshop patient-centered. Worth a read!

Have a great weekend! 

Congress may be in recess, but we’ll be busy writing letters to our Senators to pass bipartisan drug price reforms that boost competition and curb patent abuse!

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Welcome to the Week in Review.

1.  Senate Takes on PBM and Patent Reforms

 2.  Debunking Pharma Doublespeak

3.  The Inflation Reduction Act: More Savings For Patients

Have a great weekend!

Historic things happening this summer: BarbieNeopets relaunch, and Medicare releasing the names of 10 negotiated drugs. C’mon Barbie, time to check on your lower drug prices.  

Welcome to the Week in Review.

1.  Medicare Negotiation: Popular Provisions That Will Bring Relief 

 2.  Momentum Builds On PBM Reforms

3.  Continuing The Push For Competition

BONUS: It’s been almost a year since the Inflation Reduction Act passed and despite Big Pharma fear mongering, drug companies seem to be doing just fine! This week, Novartis announced a $15 billion share buyback and J&J published its quarterly earnings, which increased 6.3% for a total of $25.5 billion in sales. What was that about not enough money for R&D? 👀

Have a great weekend!

Special Edition! All About The:

Welcome to the Week in Review.

ICYMI, Senate Majority Leader Schumer sent a Dear Colleague letter indicating his intention to advance bipartisan bills to lower drug costs during the July work period. Then on Thursday, we launched the Push For Competition To Lower Drug Prices,” calling on the Senate to immediately pass bipartisan drug price competition reforms. Here’s a recap:

BONUS: Speaking of Big Pharma patent abuse, did you see that John Green called out Johnson & Johnson for seeking secondary patents on tuberculosis drug bedaquiline to maintain its monopoly on the drug? This shady move denies millions of people access to the drug. Worth a watch (plus follow the conversation on #patientsoverpatents, which has been trending on Twitter)!

Have a great weekend! 

Senators, Patients, AARP, P4ADNow, and SPACEs in Action Launch Push At Press Conference 

WASHINGTON, D.C. — Senator Klobuchar, patients, AARP, Patients For Affordable Drugs Now (P4ADNow), and SPACEs in Action launched the “Push For Competition To Lower Drug Prices” with a press conference on Capitol Hill today. To kick off the push, 35 organizations representing patients, consumers, seniors, churches, students, unions and disease advocacy groups sent a letter to the Senate calling for immediate passage of bipartisan bills that crack down on the drug industry’s anti-competitive practices and close regulatory loopholes to promote generic and biosimilar competition to lower drug prices for patients. 

“Right now, drug companies abuse our system through anti-competitive practices that extend monopolies beyond the time intended under law, leaving patients in this country paying more than three times what other wealthy nations pay for the exact same brand name drugs,” said David Mitchell, a patient with incurable blood cancer whose drugs carry a list price of more than $900,000 per year and founder of Patients For Affordable Drugs Now. “The Senate has the chance to pass a package of bipartisan bills that will reform and improve our patent and regulatory systems to encourage earlier market entry of more affordable generics and biosimilars. These are common sense, bipartisan solutions that will deliver real relief to patients through lower drug prices. We urge the Senate to act now.”

As part of the kickoff, today P4ADNow also launched new digital ads and an advocacy hub for people to urge their Senators to pass a package that includes bipartisan bills that promote generic and biosimilar competition to lower drug prices. 

This press conference took place following Majority Leader Schumer’s Dear Colleague letter indicating his intention to advance bipartisan bills to lower drug costs during the July work period. The package includes reforms voted out of the Senate HELPJudiciary, and Commerce Committees on a strong bipartisan basis earlier this year.

The following are quotes from the speakers at today’s press conference: 

“Sky-high prices have kept prescription medications out of reach for far too many Americans. By passing legislation to address the anti-competitive tactics that big pharma uses to keep drug prices high, we will enable more competition and innovation in the pharmaceutical market and lower costs for patients,” said Senator Klobuchar. “I’ll keep working to ensure all Americans can get the life-saving medications they need at prices they can afford.” 

“Americans can’t afford to pay more than 3 times what people in other countries pay for the same medicine,” said Nancy LeaMond, AARP Executive Vice President and Chief Advocacy and Engagement Officer. “Generic drugs have proven to be one of the safest and most effective ways to ensure that millions of older Americans can afford the prescription drugs they need. Now is the time for Congress to increase competition and help lower drug prices.” 

“Lowering drug prices will increase the quality of life for many people like me across this country. We are urgently calling on the Senate to immediately advance and pass the bipartisan bills to lower drug prices.” – Arthur Blair, Board Member, SPACES in Action

“Big Pharma is abusing the system and taking advantage of patients by preventing competition for life-saving drugs to protect its bottom line – people like me have no choice but to pay whatever price the companies set…It’s time to put patients’ lives ahead of drug industry profits.” – Jacqueline Garibay, 22-year-old ankylosing spondylitis patient from Austin, TX 

A recording of the event can be viewed here, and photos are available upon request.

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