The Year in Review in Prescription Drug Pricing

Welcome to the Year in Review.

Over the last 12 months, our community has been at the forefront of amplifying patient voices in the fight to lower drug prices, fighting back against pharma lies, and advocating for bills that will increase competition and reduce patent abuses. From launching the Push for Competition with AARP alongside key allies to supporting the continued fight to ensure the successful implementation of the drug price provisions in the Inflation Reduction Act, our daily efforts have centered on uplifting patient voices and holding those in power to account so everyone in the United States can get the prescription drugs they need at prices they can afford. Highlights from the year include: 

1. Patient Advocates Celebrating the Popular Drug Price Reforms

• Throughout the year, P4AD patient advocates led the charge in celebrating the impactful drug price reforms in the Inflation Reduction Act. From, Ginny Boynton sharing her story with President Biden about the impact of the Inflation Reduction Act provisions, to Steven Hatfield’s delivery of remarks during the announcement of the first 10 drugs for negotiation, to P4AD Founder and patient David Mitchell’s introduction of President Biden at the White House’s event at the National Institute of Health, patient stories have remained the cornerstone of our advocacy. Approaching the Inflation Reduction Act’s first-anniversary milestone, tangible benefits such as insulin copay caps, free vaccines, and inflation-based rebates underscore its concrete advantages for patients. In the face of Big Pharma’s misinformation, our advocates countered through insightful op-eds and discussions. David’s contributions to The Hill and Bloomberg Law’s podcast shed light on the longstanding ban on Medicare negotiation and the challenges patients endure due to exorbitant drug prices and why the drug law matters. Meanwhile, P4AD Executive Director, Merith Basey’s defense of the Act in conferences and interviews, along with Steven Hadfield’s feature in the Financial Times, emphasized the profound relief brought by Medicare negotiation, particularly evident in the implementation of insulin copay caps for crucial medications. Patient advocates including David Mitchell as well as Judy Aiken, Bob Parant, Lynn Scarfuto, Steven Hadfield, and Doug Lusty represented P4AD at 7 of the 10 Centers for Medicare and Medicaid patient listening sessions, sharing their struggles with high drug prices and countering the lies from pharma shills. These combined efforts epitomized the unwavering dedication of P4ADNOW advocates in dismantling industry resistance and championing the lasting benefits of these pivotal reforms alongside allies.

2. Push For Competition Launch And Building Momentum

• Competition in the pharmaceutical landscape is a direct challenge to Big Pharma’s long-protected monopoly, disrupting their firm grip over drug pricing. At the forefront of our organizing and advocacy efforts, this year has been our “Push for Competition to Lower Drug Prices”, headlined by a press conference in July alongside Senator Klobuchar. This push included a 6-figure digital ad campaign, featuring two powerful patient stories from Jacqueline and Lisa, culminating in over 20,000 letters sent and nearly 20,000 calls to Senate offices, echoing the voices of patients demanding legislation to combat pharmaceutical monopolies and prevent patent abuses that keep prices high. In November, along with 60 other organizations, P4AD and AARP sent a letter addressed to Senator Majority Leader Schumer and Senator Minority Leader McConnell, underscoring the urgent need for bipartisan reforms. Furthering this momentum, patient advocates including Lisa of Richmond, Texas, Sue of Crestwood, Kentucky, Pam of Granger, Indiana, Judy of Portland, Maine, and Jacqueline of Cedar Falls, Iowa, took their impassioned pleas to their representatives’ offices in a powerful display of grassroots activism. In other grassroots efforts, patient advocate Bob Parant’s op-ed in the New York Daily News and David Mitchell’s TIME op-ed alongside Tahir Amin of I-MAK emphasized the critical need for legislative action to counter Big Pharma’s monopolistic practices. Further as a result of the recent passage of the Lower Costs, More Transparency bill in the House, there is increased momentum for a comprehensive healthcare package in the Senate this month which presents an opportunity to pass a package of these bipartisan bills.

3.  Spanish Language Program Expansion

• Through a strategic collaboration with Jamii, we were able to bolster our multilingual outreach efforts to engage new and more diverse communities. This partnership was instrumental in launching a Spanish version of the Medicare Negotiation website and patient advocacy Hub, coinciding with the first anniversary of the Inflation Reduction Act in August 2023. Acknowledging that Latinos, many of whom are Spanish speakers, are disproportionately impacted by high drug prices our goal was to ensure more patients across the country were not only made aware of these new provisions but could more easily understand how they will be able to benefit from them now and into the future. P4AD further expanded its multilingual reach, through releasing Spanish-language content that included Bilingual Organizer Jesse Aguirre’s impactful op-ed in El Planeta and other communications. We introduced 152 new patients to our community who have shared their stories about high drug prices in Spanish. 

4.  Reports Driving Change

• P4AD’s relentless research efforts continued to drive toward critical policy change throughout the year. Our updated “Hidden Hand” report – Hiding in Plain Site’ illuminated the drug industry’s ties to three so-called “patient advocacy groups”: The Haystack Project, No Patient Left Behind, and the Community Oncology Alliance which operate to boost the power and profit of the drug industry. 
• Additionally, our comprehensive report on “The Burden of Cancer Drug Prices on Patients” was lauded, including by the White House, for spotlighting the profound impact of the Inflation Reduction Act on prescription drug prices and patients living with cancer.

Meanwhile, keeping pace with the ongoing developments, here’s a snapshot of the latest events in the world of prescription drug pricing.

1.  Capping the Cost of Insulin

• This week saw another step forward in the ongoing battle for more affordable insulin for millions of Americans. Sanofi, aligning with announcements in 2023 from Eli Lilly and Novo Nordisk, finally put a lid on the monthly out-of-pocket costs for its most popular Lantus insulin, capping it at $35. It’s a stark reminder that claims from major drug companies about their inability to lower prices are false. These corporations have arbitrarily maintained high prices in the US for years, prioritizing profits over people’s lives. Despite a decade of advocacy from insulin activists and increased pressure as a result of the Inflation Reduction Act, this initiative by the Big 3 does offer a new glimmer of hope for those grappling with the outrageous costs of this crucial medication. (Axios, USA Today, The Copper Courier) 

2.  Importing Rx From Canada

• The FDA’s approval of Florida’s plan to import cheaper prescription drugshighlights the pressing issue of exorbitant drug prices in the United States. While this move offers some relief, it’s not a comprehensive solution. Relying solely on state-by-state importation from Canada isn’t feasible as it’s not a sustainable way to meet the nation’s medication needs. The limitations include Canada’s inability to supply the entirety of the U.S. demand and the pharmaceutical industry’s reluctance to supply Canada adequately for further exports to the U.S. It’s clear that we require federal-level solutions to address this issue comprehensively. Expanding Medicare negotiation and implementing reforms to curb drug companies’ patent system exploitation, which stifles competition and maintains high prices, are essential. While the Inflation Reduction Act marked a critical step, more federal actions are necessary. Bipartisan bills in Congress have gained significant public support and offer potential pathways toward achieving widespread and enduring price reductions for all Americans. (FDA, New York Times)