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Our Stories

Hear directly from Americans who have been impacted by high drug prices.

Georgia | Acid Reflux

Donna's Story

I was diagnosed with acid reflux in 1997. In addition to that, I also suffer from high cholesterol. I have been on Nexium for a number of years for my acid reflux, but I recently found out that my insurance company won’t cover it anymore. I thought it would be no problem and I could […]

West Virginia | Lupus

Ashley's Story

I am a lupus patient. I am on a number of expensive medications that vary depending on what my doctor feels is the best to use at any given time. Some of the more expensive ones I’ve taken include Xeljanz, Rituxan, and an extended release version of prednisone called Rayos. High drug prices have made […]

Indiana | Type 1 Diabetes

Sa'Ra's Story

I have lived with type 1 diabetes since the age of 5. Even with insurance, a 30-day supply of my insulin runs me $1,000. It’s a cost I simply can’t cover on my own. Managing my diabetes on my own while I was in college was such a challenge. I began to eat less to […]

Minnesota | Multiple Myeloma

Ramae's Story

I have an incurable blood cancer called multiple myeloma. Myeloma patients on Medicare are paying as much as $3,000 out-of-pocket ​per month ​for Revlimid and other drugs. There are grants available for some, but not all qualify. I don’t know if I will qualify or if the grant money will be there when I need […]

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Utah | Fibromyalgia

Meg's Story

I was diagnosed with fibromyalgia years ago, and I also live with neuropathic pain. When I found out it would cost me $550 out of pocket each month to get the Lyrica I was prescribed, even with the discount card, I was stunned. I could only afford to take a third of the dose my […]

Nebraska | Type 2 Diabetes

Robin's Story

I have type 2 diabetes. I am self-employed, so money is often tight. Despite having insurance, it is difficult to pay for my insulin. At the beginning of the year, we have to pay full price for our medications. It costs me up to $450 for a single vial of insulin during that time. I […]

New Jersey | Ulcerative Colitis

Genevieve's Story

I was diagnosed with ulcerative colitis in 2013 and lupus in 2019. When I was a new graduate in 2016, I had a lapse in insurance for about two months. I was working for a small music therapy practice that didn’t provide benefits. I saved up a couple hundred dollars to get my Asacol prescription […]

California | Diabetes

Rose's Story

I have a lot of health issues that impact my daily life, including diabetes, a previous stroke, high blood pressure, and high cholesterol. I take a number of medications to ameliorate the difficulties and pain I face every day. I’m on a fixed income, and the costs are piling up for me. I don’t think […]