My daughter Penny lives with cystic fibrosis. At 5 weeks old, she began an inhaled drug that she’s expected to take for the rest of her life. That drug is about $3,500 per month. Two weeks prior to Penny’s second birthday, the FDA approved a drug called Kalydeco. This drug is $300,000 a year. Kalydeco has been a true miracle, but the price tag is huge. Last year, we had to put most medical expenses on my credit card. This isn’t a financially sustainable way to keep my family healthy, but it’s our only option right now.